Well, it's finally happened. I (Carol) have officially reached my breaking point. After 21 days of living in a 10x10 hospital room with constant alarms and stresses occurring, I've finally gone crazy.
I think it's because they keep dangling a carrot in front of us (going home) and then snatching it away...we know it's for her best that she had to stay this long, but seriously, to quote Lizzie today, "I have had enough of this!" We're really hoping that we can go home tomorrow, but we'll see. I actually think it's going to happen this time...her one medicine has been stable for about 18 hours now and they said once it's stable for 24 hours we can leave.
I truly believe that we are not given more than we can handle by the Lord, but seriously, this one got pretty close!
On a positive note, Lizzie took her first steps unassisted today...it was a wobbly little walk at first, but she did great. It almost feels like she's a baby again...we are celebrating all of these milestones that seem so minor to others, but to us, they're huge. I keep catching myself talking to her like a baby and the other day Lizzie noticed too. She looked at me and said, "Mom, I am NOT a baby." We just feel this protectiveness over her now that wasn't there this strong before.
I am so excited to get her home, to have all of us under the same roof and to figure out what our new life is going to be like. Here's hoping tomorrow will be the day!
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8 comments:
I so hope tomorrow is the day you get to home! I am sooo ready for all of you to be home under the same roof!! You better keep us updated on her when you get home! I have really enjoyed hearing about her every day! Please let me know if I can do anything guys! Love you!!!
I'm so excited for you to go home. The same offers still stand when you're home. Let us take whoever, whenever or anything else you need. Good job Lizzie! Keep your spirits high Ben and Carol. You guys are awesome.
A deserving crack at that!!! It has certainly been a rollercoaster ride for all of us! Thanks for letting us be a part! Lizzie looked so good last week I think it is time for her to go home. That will be a therapy session for all of you. I say pack it up and head it out! (I know you are familiar with the permission forgiveness clause of life!) Keep your chins up . . . there is a light! We love you and can't wait to get you home where we can hopefully ease your burden a bit easier. Fingers crossed for tomorrow!
The Gardiners
We know EXACTLY how you feel! We hope tomorrow is the day. It's good to be home. Some things are easier--some are harder, but for the most part--It's good to be home. Word of advice. Make them fill your prescriptions first thing in the morning so you don't have to wait nearly 2 hours like we did. Also, this helps with any complications on supply or with your insurance. It's good to hear such progress. Keep posting and give us a call when you are ready.
I'll keep EVERYTHING crossed that tomorrow is the day! It sounds like you're almost there. 21 days is LONG. We've never been there for quite that long at one time. Our longest was 15 days (at diagnoses and the first surgery), and then after his 3rd surgery it was 12 days. Both seemed like an eternity. I seriously can't imagine 3 full weeks! Kudos for not going crazy before now!
You guys are simply amazing to have NOT snapped....being in that hospital for as LONG as you have been!! You are such a GREAT example to us in every way. I'm hoping for your lil' family to be able to come home tomorrow and get comfy & ENJOY your own home. It's sooo over due! I would love to sit and read books to your lil' ones, while you take a much needed nap or long hot bath. Just call me and I'll be there.
Hugs~Donette
You two will be such tough chicks by the end of this . . . .not that that is any help at all whatsoever right now. The prayers keep a comin' from our neck of the woods to yours. I'm so glad the pkg. got there, Tom had such fun choosing things for his friend Lizzie and is now fascinated with the anatomy book/model we have. He wanted to see the brain to know what he was praying for. He told the lady in the store all about it. She has made quite the impact on my little five year old. He thinks she is AMAZING! We're still rooting for you!
hang in there! You guys are so strong. I don't know how you've done it. We're excited for you to come home. Corbin made Lizzie a little note. He's excited for her to get home so he can deliver it. :)
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