Lizzie slept and rested well last night...her temp and heartrate are pretty stable. We had physical therapy today and she did well walking with some assistance and did a few basic things. She has a lot better control over her left hand now and is able to pick things up with that hand.
Ben and I both feel a bit shellshocked today so this will be short. Lizzie will be having another surgery on Monday to put a permanent shunt in to drain the fluids off the brain and down into the body. The doctor said that on a scale of 1 to 10, this surgery is about a 3 in terms of how serious it is...we're glad it's fairly minor.
The doctor also looked in detail at her last CT scan and he thinks that Lizzie suffered a stroke of some kind...most likely on Saturday when she had such a hard time.
We know things will be okay, we feel that in our hearts and that's what's helping us get through the yuckiness of it all. We also feel amazing direction. Today they wanted to insert a PICC line into her...it's basically a fancy IV that goes through the body and into the heart chamber. This allows them to more easily draw blood, give fluids, etc. We both said okay but then felt very uneasy about it...she's had one before during this stay, but we just both didn't feel it would be a good thing right now.
Life is very good. Our little girl is receiving the best care possible, our other kids are being well taken care of and we are being showered down with love from our Heavenly Father and our Savior, as well as our friends and family here - what more could we ask for.
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10 comments:
We are so sorry that you are going through this! It breaks our hearts! You're in our constant thoughts & prayers! We will keep praying for you.. please let us know if we can do ANYTHING for you!
In the Ensign this month President Boyd K Packer says, "If you are helpless, He is not. If you are lost, He is not. If you don't know what to do next, He knows. It would take a miracle, you say? Well, if it takes a miracle, why not?"
You deserve a miracle & I know the Lord will bless & comfort you at this time! Anything is possible through the Lord! We will pray for you!!
Russell & Heather Deem Family
Dear Carol and Ben,
Every time I read your blog, I end up with tears in my eyes and an increase of faith. Your strength and ability to see the positive amid all this trial is really inspiring. You two are so amazing. I can see that you have been very blessed with great support from friends and family. And you are so fortunate to have each other.
We pray for Lizzie every night. I believe in miracles and have seen them in my childrens' lives. Love to you both!
Terresa (and family)
That cute little girl sure has been through the ringer! But on the bright side is in the best hands possible. Those PICC lines are horrible but sure do seem to help the people that I know that have have them. Please let me know if I can do anything to help you guys! You remain in our thoughts and prayers each and every day!
We have been thinking of you guys all week long. We continue to pray for you and love you much!
We are so sorry lizzie has to go through that! She is such a strong little girl. We'll be praying and fasting for you all. love the kunz's.
Just wanted to let you know I'm thinking and praying for you every day. I know all about the roller coaster from when Dylan was in Primary C as a baby. Hang in there and remember this too shall pass. Love,
Jaymie H.
Thanks for the updates. Sorry it is so up and down. You guys are doing amazing and we are praying for you daily.
It really is a great blessing to have such wonderful medical care and attentive doctors and nurses.
We are thankful for the many blessings you are receiving. Lizzie seems to rebound quickly from her setbacks and is one strong little girl.
You two are amazing examples. I think, considering how physically exhausted you are, that I have never seen anyone remain so steadfast.
I always thought I had an excuse for wavering when I was tired, but you are showing me that our faith truly can be unwavering.
Our prayers continue to be with you.
I just wanted you to know that our family is thinking of you and praying for you.
Love, Blake and Beth (Tanner) Downs (John's sister)
I can't imagine how tough all this has been. Nothing hurts a parent worse than seeing their children struggle either physically, emotionally or spiritually. The fear and pain is sometimes more than you can bear, but you are extremely strong, stronger than you know. The Lord has His arms around you and will help you through this, even though it may not always seem that way. I know with some of the things we've been through with our family, at times it seems you are alone and you take one step forward and three back, but as you look back, you see the Lord's hand in each step. A poem that has gotten us through so many trials is "God's Footprints." I'm sure you've heard it. You can do this. Have faith in yourselves and in the Lord. It won't be this bad forever. We are praying for you and our thoughts are with you sending you strength and love. Hang in there and never give up. Lizzie is a very special girl and has a great mission ahead of her. Love, Michelle Horspool
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