Wednesday, March 3, 2010

A Good Day

Today was a good day...no real progress to speak of, but Lizzie is stable and that makes us happy. We went on a couple walks with her in a wheelchair, went to the toy room and had a visit from Spencer and Calli. It was cute to see them in the room with Lizzie.

Calli climbed up on Lizzie's bed and said in a really sweet voice, "I'll take your brain out for you Yizzie."

Lizzie was so tired out after their visit so we took the kids and grandma and grandpa and we all went out to lunch. It was so weird not having Lizzie with us, but it was fun to be out for awhile with the other kids, although a bit stressful. Calli is really clingy and whiny when we're around - I think that's how she's dealing with everything. Spencer just ignores the situation and tries to pretend it's not happening - I think it will be a bit of an adjustment when we come home.

On the way back Ben and I were talking about how we were feeling and we both feel sweet peace and assurance that things are on the right track and that we have the help we need at this time. Last week it felt literally like we were just wrapped up in a warm blanket and carried from experience to experience. We felt so much overwhelming comfort that it's hard to describe. This week it's like that blanket has been removed, because we can handle things a bit better. We just have an inner peace that is helping us from day to day.

Lizzie is less agitated now and is having a little less hallucinations. She doesn't seem as angry and we can sometimes tease her out of a bad mood. Ben especially makes her giggle a little. She called her nurse a "stinkbutt" tonight and then realized how silly that was and laughed. We're hoping the potty talk wears off before we go home and she teaches Calli all sorts of new phrases! I got to rock her for over an hour in the rocking chair today and I loved it. I couldn't stop hugging and kissing her - I'm sure she was annoyed, but didn't yell at me, so that's a good sign.

We still don't know when we're going home. We may be here 4 or 5 more days or another week on top of that...they are still trying to figure out the correct dosage of her meds and she definitely needs a lot of physical therapy...hopefully we can do the therapy outpatient, but we may have to stay a week for inpatient therapy.

We are absolutely touched by the love, support and kindness we have been shown. We love your visits, your texts and everything you are doing for our family - I am going to recommend to Ben to buy stock in Hallmark because of all the thank you cards we're going to be writing in awhile. My heart is just a soft ball of mush thinking of all the people, especially the little children that are praying for Lizzie each day. Life is good.

8 comments:

The Stanley's said...

I keep thinking about that giggle when her grandpa bumped the balloons. I understand better how much of a lift such a simple thing as her laughter is for you. It was magical. Sleep tight.

Kedrick & Kori said...

Yay, I am glad that things are improving bit by bit. I am coming up tomorrow night to bring that home cooked meal I promised. See you then. -Kori

Anonymous said...

What sweet sharing of feelings and experiences? You both have a talent in writing down what you are feeling and what is going on! I really can't tell the difference or who is writing until a little clue shows up. The Lord is with you and Lizzie. That is neat that your children were able to have time with her. Hope each day brings continued progress - Love, Lynn & Cheryl

Anonymous said...

I'm glad to hear that things are improving. As a father I can only immagine the emotional roller coaster the you have been on watching your child endure this trial. Your family is in our prayer. My boys always remember to include Lizzy in their communications with our Heavenly Father. Thanks for sharing this information with us through your blog
Love Matt and Jessica

Collins family said...

It is wonderful to hear of the progress that Lizzie is making, and we pray that she continues to improve and that the doctors will be guided in her care. As you thank those who have visited or kept you all in their prayers or sent messages, I think that it is you we should be thanking. You are our inspiration, and your taking time to share your thoughts and what is happening with Lizzie lifts us all. Thank you, and may our Father in Heaven's choicest blessings attend Lizzie and your family.

amcfam said...

Ben and Carol,

We have been religiously reading the updates you post. We have been praying for Lizzie and your family daily. It is amazing the power of prayer has, and how easily we forget. Thank you for your example. It isn't easy to experience what you are going through with such a positive attitude and unshaken faith. We are here to help, please let us know what we can do for you and the family! I felt like I should include this poem about hope: (It was written by my nephew in the MTC on his way to Madagascar)

"Hope" by Kris McIntire

Hope is in everyone,
Hope never loses faith.
Hope is in the child’s eyes, when his father leaves to fight for freedom.
Hope is in the parents whose child has left this world, that they will see him again.
Hope is in a nation who has suffered, that it will grow strong.
Hope is in the eyes of a mother that her children will grow to serve the Lord.
Hope is the parents of a child who suffers
Hope is in the missionary that he will be an instrument in God’s hands.
Hope is in the family, that it will be for eternity.
Hope is in the soldier, who marches on to battle.
Hope is in my God, to help me every hour.
Hope is in Christ that he will ease our pain
Because of Christ’s eternal hope, we can dwell with him again.
Hope is in the Garden of Gethsemane, where drops of blood were shed for me.
Because of Christ’s eternal hope, We press forward each day.


We will continue to pray for you and Lizzie each day.

Love, Aaron & Candice

Tausha said...

Yea-happy things! You so deserve as much joyful experiences as possible! I love you alot!

Leah said...

We were heart broken to hear about what your little Lizzie and family have been going through. We're so happy that she's getting better and we pray that it only continues to! We admire your strength and enjoy being able read about it. We just wanted let you know that you're in our hearts and prayers!
Love, Leah & Jason O.