Last night sucked. Sorry for the negativity - Ben and I just both feel so sad today. Lizzie is stable, but she hasn't slept since yesterday at 2 p.m. She was up all night having horrible hallucinations a raging fever and was ripping out her IV lines and bleeding all over the place. Some of her meds include heavy steroids and her whole body is shaking uncontrollably. She attacked me with her nails and thought I was a bad lady coming to get her. We also kept asking her where she was and she said different things through the night...St. George, Las Vegas, Park City, school, home - she kept seeing Spencer and Calli and talking to them/yelling at them to stop pulling her hair and other weird things. It was funny for awhile, but then she imagined there was fire in her room and was shaking and crying uncontrollably - it was hard. She also had major sensations that she was falling and even though I was holding her she was terrified. The only thing that calmed her through the night was singing Primary songs.
They are so jam packed down here that we had to move rooms again and we are now sharing a room with someone else. There is no place for us to even sit by her bed so we're hoping they will move her out of ICU today and into the neuro trauma ward - she will have a private room again there.
We love our little support system we know we have out there, please keep the prayers coming, we feel very low right now. Thank you.
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11 comments:
Can you feel a hug through the computer? I love you guys and I pray for all of you constantly!
I know that there are many angels with you. Hold to that.
Love you!
I'm so sorry it was such a hard night! We are still praying for all of you...
Hang in there! Give her loves for us! I wish I was with you now so I could just put my arms around you and hold you!!! I love you so much! A million and one prayers are headed your way cutie. Love you!
So sorry your night was so tough. :( You are all so loved. Hold tight to that cutie patootie, Lizzy! We'll continue our prayers for your sweet family. ♥
dang.... I am so sorry...:( I had a thought this morning about how lucky lizzy is to have you and Ben for a mommy and daddy..... If she has to go through this trial she is very lucky to have both of you caring for her...... love you !
Oh, my heart hurts for you and what you ALL are going thru! I'm sorry to hear that Lizzie had such a HARD night. May the Lord continue pouring out his blessings of love, understanding and healing...he is with you!! Sending a warm fuzzy your way. I LOVE YOU! The girl's and I want to see you sooo badly. Will Friday at 12:00 work? Let us know if you are up for it. Ready to help in a heart beat! Love and hugs~Donette Julian
Poor Lizzie. And you guys, too. Is she doing better today? I feel so sad for her. The Lord will soften these memories for all of you. It will get better. We love you. Sending smiles, chocolate and love through the computer. Hope you can feel it.
We love you and your sweet Lizzie. You are in our thoughts and prayers constantly. Please let us know how we can help. We would love to keep Spencer busy here. Love, Joe and Syd
I sure wish they could figure out a better way to control pain than those medicines that cause such miserable side affects. That poor little girl. I feel so sad for you guys. I am sure you have never felt so scared and helpless. Is she doing better today? How long do they expect the fever to last? Do they have to wait for the medications to regulate her temperature? This is very complicated stuff but I am so sure that it is just for a small moment. Hang in there and try to get some rest yourselves. We continually send our love and prayers.
My heart hurts for you guys. I am praying for you constantly. Every time I think of you, I say a little prayer. I hope things improve today. Keep the faith! My sister, Tara, had brain surgery when she was 6 years old. I know how scary and complicated it can be. Wish I could be there to help in any way. Love you guys!
We will increase our prayers for Lizzie and you all. It breaks our hearts about all the stuff that she and you are going through. Our extended families are praying for you too. they also have your in their prayer groups (not members of our faith). Thank you for the updates too. Love you all. And Blake still wants to come as soon as is good.
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